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Stephen's Story: Living with Facioscapulohumeral muscular dystrophy (FSHD) in Scotland
Stephen's local health board has no record of him, despite his diagnosis of Facioscapulohumeral muscular dystrophy (FSHD) 22 years ago. The only specialist he sees is a neurologist 90 miles away from his home in Dumfries - a distance too far for him to travel, so he has yearly appointment over the phone. ☎️ "The lack of knowledge in ...
521 viewsNov 21, 2024
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